Noelle Carlozzi
University of Michigan, MI·Public Health & Epidemiology
Caring for a family member with dementia can drain a household's money as well as its time and health. Over a lifetime, care for a person with Alzheimer's disease and Alzheimer's disease related dementias (ADRD) is estimated to cost more than $400,000, and about half of that falls directly on the family.
- Fields
Public Health & Epidemiology
Medicine & Clinical Research
Psychology
- Topics
Alzheimer's disease
dementia
caregivers
- Grants
- 1 known grant, through Jun 2029
What they work on
- Identify the most impactful aspects of financial hardship by conducting semi-structured interviews with family members of people living with Alzheimer's disease and related dementias (ADRD).
- Develop a new case report form and pools of survey questions on financial stress, strain, asset depletion and financial toxicity, using interview data, a scoping review of past research and expert input.
- Field-test the new question pools in 400 families of people with ADRD and use statistical analysis to choose the best questions for each financial hardship measure.
- Build versions of the measures that can be given as long forms, short forms or computer adaptive tests (CATs), which pick each question based on a person's earlier answers.
More about the research
These costs come as out-of-pocket medical bills, long-term care and unpaid caregiving. There are also hidden costs, such as lost wages, ended careers and the declining health of caregivers. Yet there is no standard way to measure this financial hardship. Without one, it is hard to describe the problem or to find the families most at risk.
Why it matters
Families caring for someone with Alzheimer's disease or a related dementia often face heavy costs, yet public health efforts to support them are lacking. One reason is that no systematic tool exists to measure their financial hardship. Validated measures could let clinicians and researchers spot high-risk families early. They could also help focus support programs and policy on the kinds of hardship that hurt families most.
Known grants
From NIH and NSF research grants. Labs often have other funding we can't see.
Closest labs
Alexander Young
University of California-Los Angeles, CA·Psychology
Assess the commercial translation potential of an interactive patient data tracking platform for mental health through customer discovery and firsthand investigation of the industry ecosystem.
David Hancock
Weill Medical College of Cornell University, NY·Public Health & Epidemiology·Early-career
Develop and refine candidate items for the EM-AD, a new measure of elder mistreatment tailored to dementia family caregivers, using feedback from caregivers and geriatric professionals to establish that the items cover the right content.
Sarah Patterson
University of Michigan, MI·Social Science·Early-career
Determine under what circumstances complex family and kinship ties, including step, legal, biological and voluntary kin, provide care, and how this differs for older adults living with ADRD.
The school
University of Michigan: 124 labs on PI Pages, $2.1B a year on research, 963 research doctorates a year.
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