PIPages
Labs

Fahad Saeed

University of Rochester, NY·Medicine & Clinical Research

Adults aged 75 and older are the fastest-growing group starting dialysis in the United States. Yet many of them are never asked what they want from treatment, and they are rarely told about their prognosis.

Fields

Medicine & Clinical Research

Public Health & Epidemiology

Topics

chronic kidney disease

advanced CKD

dialysis

Grants
1 known grant, through May 2029

What they work on

  1. Determine whether the CKD-EDU palliative care intervention, a decision aid plus palliative clinician coaching, reduces decisional conflict at one month in patients aged 75 or older with advanced CKD.
  2. Test whether CKD-EDU improves patient well-being at six months, measured by the Burden of Kidney Disease Subscale, compared with usual nephrology care and dialysis education.
  3. Assess whether the intervention reduces six-month health services use and improves the course of end-of-life care during the last 30 days of life.
  4. Identify barriers and facilitators to implementing CKD-EDU through rapid qualitative interviews with patients, caregivers, nephrologists and palliative care clinicians.

More about the research

They are also seldom told about alternatives such as conservative kidney management (CKM), which treats symptoms without dialysis. Many of these patients value quality of life over living longer. Still, dialysis is often presented as the only option, and many later experience declining quality of life, frequent hospital use and intensive end-of-life treatment.

Why it matters

Many older adults with advanced chronic kidney disease have unanswered questions about dialysis and little chance to share their treatment preferences. This intervention could help them make kidney therapy decisions that match their goals and may reduce unwanted intensive end-of-life care. It could also create a model for building palliative care into routine kidney care.

Known grants

From NIH and NSF research grants. Labs often have other funding we can't see.

Outcomes of a Palliative Care Intervention to Improve Kidney Therapy-Decision Making for Older People with Advanced CKD

NIH · Jun 2024 – May 2029

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The school

University of Rochester: 38 labs on PI Pages, $492M a year on research, 308 research doctorates a year.

More about University of Rochester

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