Krista Harrison
University of California-San Francisco, CA·Public Health & Epidemiology
One in three older adults in the United States dies with or from Alzheimer's disease and related dementias (ADRD). Hospice, the Medicare-covered program of comfort-focused care at the end of life, can improve care quality and lower costs for people with dementia.
- Fields
Public Health & Epidemiology
Medicine & Clinical Research
Social Science
- Topics
hospice
palliative care
end-of-life care
- Grants
- 1 known grant, through Dec 2028
What they work on
- Identify how Black, Latinx and Asian American care partners define high-quality end-of-life dementia care, through interviews with 90 people about hospice and other home-based supportive care.
- Document hospice organizational practices and policies that affect care for racial and ethnic minoritized people with ADRD, through case studies of 24 hospices using surveys, observation, document analysis and staff interviews.
- Develop a community-prioritized set of recommended services, clinical practices and policies for dementia hospice care, using six focus groups and a three-stage modified Delphi consensus process with care partners, clinicians, policymakers and researchers.
More about the research
Yet Black, Latinx and Asian American people with dementia are less likely to enroll, and standard hospice care is not designed for dementia-specific needs such as behavioral symptoms. This project asks how racism shapes access to hospice, its quality and how well it fits for racial and ethnic minoritized people with ADRD, and what should change.
Why it matters
Black, Latinx and Asian American families caring for someone with dementia face unequal access to good end-of-life care. The prioritized recommendations from this work could guide professional and ethics guidelines, hospice practices, and policy and regulatory changes. These changes could make hospice care fairer and better suited to people with dementia and their families.
Known grants
From NIH and NSF research grants. Labs often have other funding we can't see.
Closest labs
Olga Jarrín Montaner
Rutgers University-New Brunswick, NJ·Public Health & Epidemiology
Harmonize and merge multiple datasets into a repository of aging trajectories linking care settings, geriatric syndromes and physical function to patient, community, health-system and environmental risk factors such as air pollution.
Elyse Singer
Southern Methodist University, TX·Social Science
Document how terminally ill patients, their families and palliative care clinicians define a dignified death, using ethnographic fieldwork and interviews conducted in health facilities.
Huiwen Xu
Emory University, GA·Public Health & Epidemiology
Examine whether Black and Hispanic nursing home residents with dementia have less access to Alzheimer's special care units, using decomposition methods on Medicare claims and resident assessments for 819,415 newly admitted long-stay residents across 15,305 facilities.
The school
University of California-San Francisco: 89 labs on PI Pages, $2.1B a year on research, 164 research doctorates a year.
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