PIPages
Labs

M. Felice Ghilardi

CUNY City College, NY·Public Health & Epidemiology

Parkinson's disease is a progressive disorder of the nervous system that causes movement problems such as tremor and stiffness, along with non-movement symptoms, and current therapies only partly and temporarily help. Hispanic people develop Parkinson's at about the same rate as white non-Hispanic people, yet their disease management is worse and they make up well under 5% of clinical trial participants rather than the roughly 20% expected.

Fields

Public Health & Epidemiology

Medicine & Clinical Research

Neuroscience

Topics

Parkinson's disease

health disparities

Hispanic health

Grants
1 known grant, through Mar 2029

What they work on

  1. Deliver Parkinson's disease education to Hispanic communities in New York City by selecting, training and monitoring promotores de salud (local health educators) and community stakeholders, supported by newsletters, social media and disease-related websites.
  2. Assess feasibility, adherence and retention of Hispanic patients with Parkinson's disease in a two-week inpatient rehabilitation program, measuring effects on patient and caregiver quality of life immediately after and six months later.
  3. Test a comparable outpatient exercise and multidisciplinary care program for Hispanic patients with Parkinson's disease, tracking participation and gathering patient feedback to improve engagement in research.
  4. Build outreach models and sustainable partnerships with community-based organizations that can serve as infrastructure for future Parkinson's clinical studies, education and care in Hispanic and other populations.

More about the research

Low participation feeds a cycle of stigma and inadequate care. This project asks why these gaps exist, including cultural reasons, and tests ways to close them in the Hispanic community of New York City, which is about a quarter of the city's population.

Why it matters

Hispanic patients with Parkinson's disease receive poorer care and are strongly underrepresented in clinical trials. This project could yield tested outreach models, trained community health educators and durable community partnerships that increase research participation and improve care, while also assessing whether inpatient and outpatient rehabilitation programs improve quality of life for patients and caregivers, helping reduce health disparities.

Known grants

From NIH and NSF research grants. Labs often have other funding we can't see.

Creating tools to enhance PD care and research participation of Hispanic-Latino community

NIH · Aug 2024 – Mar 2029

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The school

CUNY City College: 9 labs on PI Pages, $72M a year on research, 31 research doctorates a year.

More about CUNY City College

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